Community of Practice

The session highlighted how community-centered models can strengthen prevention, early screening, and equitable access to care. Speakers from the Milken Institute’s Project Prevent and Johns Hopkins School of Nursing’s Neighborhood Nursing shared practical approaches for embedding trusted partnerships, nurses, and community health workers into local settings to improve outcomes and build trust. Participants also exchanged real-world examples reinforcing the critical role of community advocacy in driving meaningful and lasting public health impact.

Explored how policy developments could shape the future of the U.S. Preventive Services Task Force (USPSTF) and influence access to preventive services. Experts from Avalere Health outlined USPSTF’s role in determining coverage, while advocacy leaders from ACS CAN and Breakthrough T1D highlighted the impact on cancer and diabetes screening and the importance of unified advocacy. Participants gained clarity on stalled recommendations, potential federal reorganization, and opportunities to engage in protecting equitable access to essential preventive care.

The 2025 Community of Practice series launched with a session focused on vaccine confidence and informed decision-making. This discussion led by Vaccinate Your Family explored inclusive messaging strategies, community-based education tools, and policy approaches to help advocacy organizations engage effectively around vaccines.

The 2024 Community of Practice webinar series focused on helping advocacy organizations measure and communicate their impact effectively. This report summarizes key insights from three sessions covering setting meaningful goals with Dr. Melvin Echols (American College of Cardiology), creating a culture of measurement with Veronica Bohorquez-Medd (MMRF), and effective storytelling with Erin Jones and Danielle Procopio (March of Dimes).

By enhancing our skills in communicating with AI we are expanding our capacity to understand and address the diverse needs of those we advocate for. This report summarizes strategies for patient advocacy groups to accelerate their impact through AI prompting.

Generative artificial intelligence (AI) experts led advocacy group leaders in a conversation about harnessing the power of AI. This report summarizes the suggestions for generative AI use, practical applications, and cautionary insights discussed during this Community of Practice.

Patient advocacy leaders shared insights about successful approaches their organizations are using to build trust with their patient communities. This report summarizes key takeaways from CoP participants as well as useful resources to help US advocacy groups implement them.

The first convening of the community of practice established its vision and cadence. This report details the community's purpose, value, topics of learning, and concrete next steps.