Exploring Factor Levels: Starting with the basics
For patients living with Hemophilia A, every choice they make, from care discussions to everyday movement, shapes more than just a day; it shapes their future. Protecting what matters most isn't just about managing symptoms; it's about building a life with fewer perceived limitations and more possibilities. Understanding factor levels can be a key to exploring those possibilities.
What are Factor Levels and Why Do They Matter?
Factor levels refer to the amount of clotting factor that occurs in a person’s blood, specifically Factor VIII for those living with Hemophilia A. This measurement is expressed as a percentage of normal clotting ability.
The reality for many living with Hemophilia A is that even with proactive measures, understanding the impact of higher factor levels remains a challenge. Even after an individual receives an infusion of a factor level replacement therapy, levels can fluctuate rapidly. This can leave individuals feeling vulnerable and potentially limit participation in daily activities. The heightened risk of bleeding can lead people with hemophilia to adjust their lifestyles, perhaps avoiding activities they enjoy, to protect their health.
Understanding factor levels can empower patients to gain a deeper insight into their unique needs. By collaborating with a care team, you can explore how to meet your individual care aspirations.
Factor levels are more than just numbers. A person’s factor level helps determine whether they have hemophilia and, if so, how it’s classified – mild, moderate, or severe. Understanding factor levels can play a key role in understanding your hemophilia.
Hemophilia severity levels vary by factor activity and bleeding risk.
“I am living proof that hemophilia does not have to limit what you can achieve in life. I have been able to move the needle forward in my education and career by staying inspired, physically fit and leaning on the support of others”
- Guadalupe Hayes-Mota, living with Hemophilia A
Starting the Factor Level Dialogue with a Doctor or Healthcare Provider
Knowing the power of factor levels provides a better understanding of hemophilia and the body's unique needs. For too long, the everyday impact of Hemophilia A has been overlooked, and too many have been expected to settle for a life that feels “good enough.”
